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From Diagnosis to Advocacy: Alexa's Journey
Manage episode 438920407 series 3407225
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Have you ever wondered how one navigates life with multiple chronic illnesses? Meet Alexa Sutherland, who has been fighting against juvenile rheumatoid arthritis since she was just 15 months old and later fibromyalgia, ankylosing spondylitis, and the more recent Grave's disease diagnosis. Her journey is a testament to resilience and the power of community. Alexa shares her story, highlighting both the struggles and the support she's found, particularly through memorable connections formed at significant moments, like a poignant meeting in Colorado. Her advocacy on social media shines a light on the often unseen challenges of invisible disabilities, emphasizing the importance of camaraderie among those with similar battles.
Join us as we unpack the complexities of managing multiple chronic illnesses such as Graves' disease, fibromyalgia, RA, and AS. Alexa and I delve into the world of evolving medications and the emotional turmoil that new diagnoses can bring. We'll also touch on the excitement and nerves surrounding my upcoming speaking opportunity in DC, sharing insights and the sometimes-comical confusion that comes with engaging in high-level scientific discussions. This episode promises to provide a heartfelt look at chronic illness management, the hope brought by medical advancements, and the unyielding strength within the chronic illness community.
Blog www.glowlexa.com
IG: https://www.instagram.com/glowlexa/
TT: https://www.tiktok.com/@alexasutherland13
Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way.
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
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Kapitler
1. Living With Chronic Invisible Illnesses (00:00:00)
2. Navigating Multiple Chronic Illness Diagnoses (00:05:31)
3. Navigating Medical Conference Speaking Invitation (00:10:53)
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