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Understanding PANDAS: Insights from a Family's Experience with Don Donnelly
Manage episode 457430577 series 3598921
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In this episode, Jen speaks with Don about his family's journey navigating the complexities of PANDAS, a pediatric autoimmune disorder. They discuss the challenges of obtaining a correct diagnosis, the importance of advocacy, and the role of education in recognizing symptoms. Don shares his experiences with the medical community, the emotional toll on families, and the significance of community support. He also highlights the importance of writing his book to help other families facing similar struggles and the need for greater awareness of PANDAS in schools and medical practices.
Key Takeaways:
- Advocacy for children's health is crucial, especially in misunderstood conditions.
- Education about rare disorders like PANDAS is essential for early recognition.
- Collaboration between parents, teachers, and medical professionals is key.
- There is hope and recovery possible for children diagnosed with PANDAS.
Episode Highlights:
[02:37] The Onset of Scotty's Symptoms
[06:21] Navigating the Medical Maze
[10:37] The Role of Advocacy in Healthcare
[21:15] The Decision to Write the Book
[24:46] Finding Hope and Community Support
Resources Mentioned:
Navigating PANDAS - A Family’s Journey to Healing and Advocacy: https://a.co/d/gDKrIqM
Navigating PANDAS Website: www.navigatingpandas.com
Neuroimmune Foundation: https://neuroimmune.org
PANDAS Network: https://pandasnetwork.org/resources/parent-resources/
Connect:
https://www.instagram.com/donnelly_don?igsh=ZTFhd3NuYWlqdnF5
https://www.facebook.com/share/b6tQ99T1mbvCtzTv/?mibextid=LQQJ4d
https://www.linkedin.com/in/don-donnelly-34712610
Go to http://www.mymoodymonster.com to learn more about Moody today!
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