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Indhold leveret af Monika Aldarondo. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Monika Aldarondo eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.
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Joanne

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Manage episode 336128839 series 1932685
Indhold leveret af Monika Aldarondo. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Monika Aldarondo eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

Joanne found community and mission after her son was diagnosed with pediatric PSC over 15 years ago

Joanne’s son was diagnosed with Primary Sclerosing Cholangitis at 15 and she has walked the journey with him for over a decade and a half. In doing so, she not only advocates for him but for all PSCers in her work with PSC Partners Seeking a Cure. She talks about being a medical mom, how parents can work with schools, the importance of community and how even through the challenges and bright spots of chronic illness living, she will always take her role as mom seriously.

  continue reading

18 episoder

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Joanne

PSC Mami

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Manage episode 336128839 series 1932685
Indhold leveret af Monika Aldarondo. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Monika Aldarondo eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

Joanne found community and mission after her son was diagnosed with pediatric PSC over 15 years ago

Joanne’s son was diagnosed with Primary Sclerosing Cholangitis at 15 and she has walked the journey with him for over a decade and a half. In doing so, she not only advocates for him but for all PSCers in her work with PSC Partners Seeking a Cure. She talks about being a medical mom, how parents can work with schools, the importance of community and how even through the challenges and bright spots of chronic illness living, she will always take her role as mom seriously.

  continue reading

18 episoder

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