Episode 469 - Victoria McKinnon I'm Aware That I'm Rare: The Phaware® podcast

Artwork

Indhold leveret af phaware global association and Phaware global association. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af phaware global association and Phaware global association eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

I'm Aware That I'm Rare: the phaware® podcast « »
Episode 469 - Victoria McKinnon

1M ago 16:22

Del

MP3•Episode hjem

Indhold leveret af phaware global association and Phaware global association. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af phaware global association and Phaware global association eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

Victoria McKinnon shares her personal experience with pulmonary hypertension, specifically her son Owen’s eight week battle with the condition. Owen was diagnosed with alveolar capillary dysplasia (ACD), a genetic disease that causes pulmonary hypertension. Despite initial improvements, they ran out of treatment options and ultimately had to make the difficult decision to remove care. Victoria emphasizes the importance of communication and honesty from healthcare professionals, as well as the support and knowledge gained from joining online support groups. She also discussing her fundraising efforts to support research and find solutions for children with PH. Learn more about Victoria’s fundraising efforts: www.withlovefromowen.com

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com

… continue reading

477 episoder

Artwork

Episode 469 - Victoria McKinnon

I'm Aware That I'm Rare: the phaware® podcast

0-10 subscribers

published 1M ago

Del

MP3•Episode hjem

Indhold leveret af phaware global association and Phaware global association. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af phaware global association and Phaware global association eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

Victoria McKinnon shares her personal experience with pulmonary hypertension, specifically her son Owen’s eight week battle with the condition. Owen was diagnosed with alveolar capillary dysplasia (ACD), a genetic disease that causes pulmonary hypertension. Despite initial improvements, they ran out of treatment options and ultimately had to make the difficult decision to remove care. Victoria emphasizes the importance of communication and honesty from healthcare professionals, as well as the support and knowledge gained from joining online support groups. She also discussing her fundraising efforts to support research and find solutions for children with PH. Learn more about Victoria’s fundraising efforts: www.withlovefromowen.com

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com

… continue reading

477 episoder

Alle episoder

×

Velkommen til Player FM!

Player FM is scanning the web for high-quality podcasts for you to enjoy right now. It's the best podcast app and works on Android, iPhone, and the web. Signup to sync subscriptions across devices.

Lyt til 500+ emner