))
Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia
Manage episode 310696191 series 3068946
Indhold leveret af Dana Mauro. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Dana Mauro eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.
Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia in particular. He is known as the 'rare disease warrior' and, as a patient with a 'life-limiting' rare disease, he can convey the patient engagement message from his point of view in all issues regarding the wellbeing of patients.Alan has established a patient-driven and focused group and campaigns at many levels, including patient forums, local and regional health boards, Welsh/UK government organisations, as well as taking part in many global conferences, in person or via the internet.
iTunes
https://itunes.apple.com/us/podcast/know-ataxia-ataxia/id1312495222?mt
SoundCloud
https://soundcloud.com/user-536040137-843024175
Facebook
https://www.facebook.com/ataxiadidyouknow/
Website
http://www.rideforjohn.org/
Instagram
https://www.instagram.com/ataxian_/
55 episoder
Del
