Storytelling With A Purpose: How Tre Burge Is Making Waves Narcolepsy Navigators podcast

42:44

Summary What does it mean to truly thrive with narcolepsy? In this powerful episode of Narcolepsy Navigators , we sit down with Dawn Super , a passionate advocate who has lived with Narcolepsy Type 1 for over 40 years. From childhood isolation to self-acceptance , Dawn takes us through the challenges of growing up misunderstood, learning to manage symptoms, and the mental health struggles that come with living with a chronic illness. Dawn shares hard-earned wisdom on resilience, self-love, and why finding community is crucial for people with narcolepsy. She also discusses how positivity isn’t about ignoring reality but embracing it with strength and grace . Whether you have narcolepsy, struggle with mental health, or are looking for inspiration, Dawn’s journey is one you won’t want to miss. Listen now! ________________________________________________ Chapters (00:10) Narcolepsy and Mental Health (07:53) Navigating Social Interactions and Self-Acceptance (22:04) Personal Growth and Self-Acceptance (33:15) Resilience and Self-Discovery in Narcolepsy…

Narcolepsy Navigators Podcast

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Storytelling with a Purpose: How Tre Burge is Making Waves 41:35

for 14 dage siden41:35

41:35

Summary ️ What if the world saw narcolepsy for what it truly is? Meet Tre Burge, an educator, designer, and fierce narcolepsy advocate, as he takes us through his journey of living with Narcolepsy Type 1. Diagnosed at 18, Tre quickly realized the lack of awareness, representation, and resources surrounding sleep disorders—especially in Black and Brown communities. In this episode, Tre shares how he turned his experience into a mission: from launching Wake Up Entertainment, a creative hub for sleep disorder advocacy, to using social media, fashion, and media storytelling to reshape public perceptions. His passion for authentic representation in film, TV, and online spaces is breaking barriers and sparking conversations worldwide. Join us for a raw, powerful conversation about creativity, resilience, and the urgent need for accurate narcolepsy awareness. Listen now! Chapters (00:10) Narcolepsy Advocacy Through Personal Journey (10:51) Creative Representation in Media for Narcolepsy (24:54) Narcolepsy Advocacy and Representation in Media (34:01) Building Awareness Through Creativity Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences. Follow and support Tre Burges: Website: https://rb.gy/bq70mr Instagram: https://www.instagram.com/hefallsasleepshop/ TikTok: https://www.tiktok.com/@hefallsasleep?lang=en Follow and support Narcolepsy Navigators: OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***…

Narcolepsy Navigators Podcast

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Jamie Nicole: Turning Diagnosis into Purpose 58:26

for 29 dage siden58:26

58:26

In this inspiring episode of Narcolepsy Navigators , we meet Jamie Nicole , a certified Holistic Health Coach, Autoimmune Strategist, and unstoppable advocate. Diagnosed with narcolepsy type 2 at 39, Jamie shares her journey of battling years of exhaustion, misdiagnoses, and systemic barriers—all while juggling life as a student, mother, and professional. Jamie dives deep into her experience with autoimmune diseases, the emotional toll of undiagnosed narcolepsy, and how holistic health practices helped her regain control. From reversing Hashimoto's symptoms to managing narcolepsy through nutrition, movement, and mindset shifts, Jamie’s story is a masterclass in resilience. Join us as Jamie uncovers the power of self-advocacy, the importance of community support, and why living fully with chronic illness is not just possible—it’s revolutionary. Chapters (00:14) Living With Narcolepsy 12:52) Autoimmune Diseases and Narcolepsy Relationships (22:40) The Struggle With Narcolepsy Diagnosis (27:59) Narcolepsy and Autoimmune Lifestyle Changes (41:24) Community Support for Chronic Illness (46:49) Autoimmune Protocol and Nutrition Strategies (53:06) Living Optimally With Chronic Illness Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences. Follow and support Jamie Nicole: Website: https://naturalhealing.coach/ Instagram: https://www.instagram.com/healcoach/ LinkedIn: https://www.linkedin.com/in/healcoach/ Follow and support Narcolepsy Navigators: OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***…

Narcolepsy Navigators Podcast

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Sleeping for Weeks: Imaarl’s Story with KLS 56:33

for 5 weeks siden56:33

56:33

London’s rush never stops—but for Imaarl Duprey, time did. At 18, what should have been a typical New Year’s Eve turned into the beginning of a mystery illness that would steal weeks, even months, of her life at a time. Diagnosed with Kleine-Levin Syndrome (KLS), or Sleeping Beauty Syndrome, Imaarl found herself trapped in a cycle of disbelief, misdiagnosis, and isolation, waking up to a world that had moved on without her. In this episode of Narcolepsy Navigators, Imaarl shares what it’s like to lose time, battle stigma, and fight to be believed. She dives into the emotional toll on her family, the frustration of an untreatable condition, and the resilience it takes to rebuild a life interrupted by sleep. Now a mental health advocate and researcher, she’s turning her story into awareness, challenging misconceptions, and proving that rare disorders deserve recognition. Listen now for a powerful conversation on resilience, advocacy, and reclaiming time. Chapters (00:10) Living With Klein-Levin Syndrome (10:50) Uncontrollable Sleep Episodes and Diagnosis (14:41) Navigating Life With KLS Diagnosis (21:44) Impact of KLS Episodes on Life (27:53) Living With KLS (36:51) Navigating Stigma Around KLS (44:48) Navigating Uncertainty With KLS (50:29) Navigating Life With KLS Challenges Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences. Follow and support Narcolepsy Navigators: OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***…

Narcolepsy Navigators Podcast

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Dreams, Hallucinations, and Chloe's Life with Narcolepsy 1:01:17

for 9 weeks siden1:01:17

1:01:17

In this episode, we are joined by Chloe, who shares her compelling journey of balancing narcolepsy type 1 and obstructive sleep apnea while pursuing a career in optometry. From the thrill of quad biking to the challenges of everyday tasks like getting a haircut, this episode uncovers the rollercoaster ride of managing sleep disorders. From the comical to the challenging, we explore how everyday tasks like getting a haircut can become monumental experiences. Our conversation ventures into the nuanced aspects of narcolepsy, such as vivid dreams, hallucinations, and the comforting role pets can play during uncertain times. We share strategies for staying awake during important moments, like lectures, and the unique ways our pets help us navigate these challenges. Listen in as we tackle misconceptions head-on and reveal how narcolepsy has not only shaped our relationships and social interactions but has also become a significant part of who we are. Chapters (15:55) The Emotional Impact of Diagnosis (23:13) Managing Narcolepsy: Medication and Daily Life (28:22) Coping Mechanisms for Narcolepsy (30:23) Experiencing Hallucinations (36:11) The Impact of Trauma on Hallucinations (39:44) Auditory Hallucinations and Their Comfort (44:53) Navigating Relationships with Hallucinations (52:29) Social Challenges in University Life Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences. Follow and support Narcolepsy Navigators: OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***…

Narcolepsy Navigators Podcast

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20 Years to Clarity: Glenn's Narcolepsy Experience 57:58

for 10 weeks siden57:58

57:58

Summary Glenn takes us through his remarkable journey to a proper diagnosis of narcolepsy type 2 after 20 long years, sharing how his life and career in local government have been influenced by his symptoms and the critical importance of workplace understanding and accommodation. The episode sheds light on many struggles faced by those with undiagnosed narcolepsy, like Glenn, whose excessive yawning and unintended naps were often misinterpreted. We talk about the broader challenges of receiving proper medical guidance, initial misdiagnosis, and how additional health issues like osteoporosis and vertigo complicate the path to understanding and managing narcolepsy. The social and professional hurdles are real, and Glenn recounts personal anecdotes about how these experiences shaped his life, emphasizing the need for awareness and correct support. Glenn's candid conversation about the underrepresentation of men in the narcolepsy community, along with the stigma of acknowledging such conditions, is a powerful reminder of the need for diverse voices. As we explore themes of acceptance, self-kindness, and the impact of community connections on mental health, Glenn and I underline the importance of normalizing narcolepsy. We also reflect on the strength gained through sharing stories within the community, leaving listeners with a message of resilience and the importance of self-care. Join us to explore the wisdom found in connection and the power of letting go of shame to embrace a full life despite narcolepsy. CHAPTERS (03:26) Living with Narcolepsy Type 2 (05:37) Impact of Diagnosis on Career (09:08) Misdiagnosis and the Road to Narcolepsy (16:11) Challenges in Seeking Help (22:47) Support and Community in Australia (25:57) Advocacy and Representation in Narcolepsy (34:01) Social Life and Narcolepsy (37:24) Stress Management Strategies (44:29) The Importance of Self-Kindness (48:34) Community and Connectio n Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences. Follow and support Glenn: https://www.instagram.com/glenn2145/ Follow and support Narcolepsy Navigators: DONATE: https://square.link/u/AhLKgFK4 OUR WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***…

Narcolepsy Navigators Podcast

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Rachel’s Superpower: Advocacy Through Sleep and Song 1:05:41

for 11 weeks siden1:05:41

1:05:41

Summary In this episode of Narcolepsy Navigators, Rachel Nesmith, also known as Sleepy American, shares her personal journey with narcolepsy, the challenges of motherhood, and how she uses music as a platform for advocacy. Rachel discusses her diagnosis, the impact of narcolepsy on her life and family, and the importance of community support. She emphasizes the need to change public perceptions of narcolepsy through her music, aiming to raise awareness and provide relatable content for others facing similar challenges. In this conversation, the speakers discuss the critical importance of advocacy for narcolepsy awareness, the challenges faced in diagnosis and treatment, and the personal experiences of living with narcolepsy. They emphasize the need for better representation and understanding of the disorder, using transformative analogies to convey the realities of narcolepsy. The discussion also touches on identity, acceptance, and the significance of community support in navigating life with narcolepsy. Chapters (02:52) Understanding Narcolepsy and Its Impact (05:46) Family Dynamics and Support Systems (09:09) The Challenges of Motherhood with Narcolepsy (12:00) Music as a Medium for Advocacy (14:47) The Role of Music in Raising Awareness (20:46) Navigating Treatment and Support (23:59) The Importance of Community and Advocacy (36:30) Challenges in Diagnosis and Treatment (51:04) Identity and Acceptance of Narcolepsy (57:12) Community Support and Connection Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences. Follow and support Rachel: Linktree: https://tinyurl.com/dmvcxjda Instagram : https://www.instagram.com/thenapcave/ Follow and support Narcolepsy Navigators: OUR WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***…

Narcolepsy Navigators Podcast

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Redefining Rest: Haley’s Resilience with IH and Chronic Illnesses 50:16

for 14 weeks siden50:16

50:16

Years ago, Hayley Wall made the bold decision to transition from a demanding hospital role to a flexible occupational therapy position in pediatric home health. This change not only suited her professional skills but also provided the adaptability needed to manage her idiopathic hypersomnia (IH). In this episode, Hayley opens up about how this career shift has empowered her to effectively balance her health with her work and personal life. We also hear from our co-host Liz, who shares her anticipation of an upcoming family event and reflects on her own journey living with narcolepsy. Navigating the complexities of chronic illness is no easy feat, especially when conditions like type 1 diabetes, idiopathic hypersomnia, and even narcolepsy intersect. Our conversation traverses the landscape of symptoms, diagnostics, and the technological aids that assist in managing these conditions. Hayley and I exchange stories about how self-awareness has been vital in recognizing and addressing the symptoms of our respective illnesses. The dialogue offers insights into the diagnostic processes for IH and the differences from narcolepsy, painting a vivid picture of the day-to-day challenges faced by those living with these conditions. The power of community, advocacy, and transparency emerges as a central theme throughout our discussion. Hayley shares her passion for advocacy through her social media presence, the Sleepy_OT, and underscores the importance of being open about health challenges with employers to ensure the necessary accommodations are in place. As we explore the balance between professional duties and personal health, we highlight the significant role of supportive communities in making the journey less isolating. Wrapping up with a note of encouragement, we remind our listeners to engage in self-care and seek professional guidance for their health needs. Chapters Timestamps (02:44) Benefits of Pediatric Home Health (07:59) Parental Control and Support for Diabetes (16:37) Managing Productivity and Energy Levels (19:37) Using Yoga Balls for Sensory Input (24:28) Flexibility and Understanding in Home Health (29:36) Raising Awareness of Idiopathic Hypersomnia (36:23) Navigating Professional Identity With Chronic Conditions (48:03) Overlap in Sleep Disorders and Comorbidities Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences. Follow and support Haley: Instagram: https://www.instagram.com/thesleepy_ot/ Rare Patient Voice: https://rarepatientvoice.com/rp/thesleepyot Follow and support Narcolepsy Navigators: OUR WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***…

Narcolepsy Navigators Podcast

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Living with Narcolepsy & Autism: Rahmat's Path 39:48

for 15 weeks siden39:48

39:48

Rahmat Farina's journey with narcolepsy began at the age of 20, and it has been marked by resilience and introspection. Imagine trying to maintain your education and daily life while being suddenly overtaken by sleep attacks and sleep paralysis—this was Rahmat's reality. His initial struggles were compounded by disbelief from his family, but understanding grew as his condition became more visible to those around him. With a background in psychology, Rahmat was well-equipped to seek the right medical guidance, shedding light on the perseverance required to navigate the unknown and find answers. His story is a powerful reminder of the importance of early diagnosis and the transformative impact of self-awareness. In our conversation, the complexities of living with both narcolepsy type 2 and autism are laid bare, revealing the necessity for personalized strategies. Rahmat shares how lifestyle changes, such as diet and exercise, have contributed to managing his symptoms. We also delve into the emotional intricacies of relationships, focusing on the support and understanding that are crucial for someone with chronic health challenges. Rahmat's insights reveal the profound strength found in community and connection, underscoring the hope for increased global awareness of narcolepsy, particularly in Indonesia. This episode is not just a narrative of personal growth but an invitation to foster understanding and support among those facing similar paths. Chapters Timestamps (04:33) Sharing About Sleep Paralysis Symptoms (08:53) Finding a Diagnosis (13:18) Impact of Undiagnosed Narcolepsy on Health (17:01) Evolving Friendships and Support System (22:36) Identifying Food Triggers for Sleepiness (34:02) Raising Awareness for Narcolepsy Support Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences. Follow and support Narcolepsy Navigators: Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast NEW WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife ***If you find these symptoms relatable, please seek medical advice.***…

Narcolepsy Navigators Podcast

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Narcolepsy's Brother :Kleine–Levin 1:24

for 16 weeks siden1:24

1:24

Hello Everyone, We are so excited to be back for Season 2 of Narcolepsy Navigators Podcasts. Here is a brief announcement thanking all of our wonderful listeners from around the world. Welcome To Season 2. We look forward to hearing your stories. Follow and support Narcolepsy Navigators: Instagram : https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook : https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn : https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube : https://www.youtube.com/@NarcolepsyNavigatorsPodcast NEW WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife THANK YOU TO EVERY SINGLE PERSON WHO TAKES THE TIME TO LISTEN. WE APPRECIATE THE SUPPORT SO MUCH!…

Narcolepsy Navigators Podcast

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Awake in Colour: Angela’s Creative Outlet for Narcolepsy 46:13

for 17 weeks siden46:13

46:13

In this compelling episode of Narcolepsy Navigators, we meet Angela, an inspiring artist living with narcolepsy and cataplexy. Through her candid storytelling, Angela reveals how creativity and support systems have become her sanctuary amidst the challenges of living with unpredictable sleep disorders. What You’ll Learn: How Angela uses bead art as a therapeutic escape from medical trauma and daily challenges. The role of emotional support animals, including Angela’s beloved rat, Didamus, in fostering mental well-being. The complexities of living with cataplexy, including sudden muscle weakness, public misconceptions, and the proactive steps Angela takes to educate others with resources like pamphlets for healthcare professionals. Why Angela turns to horror and sci-fi films as a coping strategy for managing cataplexy triggers and the fascinating intersection of lucid dreaming with her condition. Highlights: Angela’s resilience in turning challenges into triumphs, including gaining international recognition for her art and accolades from the drag community. The vital role of supportive caregivers and networks in helping those with narcolepsy navigate life’s hurdles. Insights into the need for greater empathy, awareness, and accurate representation of narcolepsy and cataplexy in society and media. Join us as Angela shares her journey of creativity, advocacy, and resilience, proving that even in the face of immense challenges, art and community can be transformative. Listen Now: Discover how Angela’s story sheds light on the realities of living with invisible disabilities and the profound impact of art and support on mental health. Chapter Timestamps (00:10) Navigating Life With Narcolepsy and Art (13:54) Living With Severe Cataplexy Challenges (24:07) Artistic Escape and Lucid Dreaming (33:44) Navigating Life Through Art and Narcolepsy Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences. Follow and support Angela: Website: https://sleepyunicornpixelart.com Instagram: https://www.instagram.com/awesomeangela13/ TikTok: https://www.tiktok.com/@awesomeangela13?is_from_webapp=1&sender_device=pc Follow and support Narcolepsy Navigators: Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast NEW WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife THANK YOU TO EVERY SINGLE PERSON WHO TAKES THE TIME TO LISTEN. WE APPRECIATE THE SUPPORT SO MUCH! ***If you find these symptoms relatable, please seek medical advice.***…

Narcolepsy Navigators Podcast

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Narcolepsy’s Hidden Toll: Tamby’s Journey 1:00:34

for 19 weeks siden1:00:34

1:00:34

Welcome back to Narcolepsy Navigators for an eye-opening Season Two episode that dives into Tamby's journey with narcolepsy. In this heartfelt conversation, Tamby shares the raw reality of living with a misunderstood condition, navigating cultural misconceptions, and dealing with a whirlwind of challenges, from hallucinations to unexpected cataplexy attacks. She recounts memorable moments, like when family members tried to ward off “evil spirits” by breaking eggs over her head, and reveals how even a Seventh-day Adventist boarding school, where she hoped for understanding, fell short. This episode goes deeper, uncovering the well-intentioned, if unconventional, interventions from teachers and family, and Tamby’s resilience through years of misdiagnoses and social stigma. Together, we explore why advocacy and accurate portrayals in media matter, and how support systems shape the lives of people with narcolepsy. Join us for Tamby’s incredible story and a closer look at the strength, humour, and humanity needed to live boldly with narcolepsy. Chapter Timestamps (00:10) Life With Narcolepsy (09:17) Struggles With Sleep and School (21:24) Navigating School and Misdiagnoses (27:36) Navigating Narcolepsy and Misunderstanding (40:38) Challenges of Living With Narcolepsy (51:28) Living With Narcolepsy and Advocacy Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences. Follow us on Social Media for updates: Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast ***If you find these symptoms relatable, please seek medical advice.***…

Narcolepsy Navigators Podcast

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Mathilda: Thriving with Narcolepsy from Age Three 52:18

for 25 weeks siden52:18

52:18

Imagine being the youngest person ever diagnosed with narcolepsy at just three years old. Today, we're honoured to share the extraordinary journey of Mathilda, who has spent her life battling and thriving despite this complex condition. Joined by our Marketing Manager Iris, also living with narcolepsy type 1, we dive into Mathilda's world—from her early diagnosis to the release of her mother Claire's heartfelt memoir, "Waking Mathilda." In this deeply personal episode, Mathilda opens up about the emotional challenge of reading her own story through her mother's eyes and the resilience it takes to navigate life with narcolepsy and cataplexy. Hear firsthand how she has managed to maintain her sense of self and privacy amidst the attention brought by her unique medical journey. Whether you're familiar with narcolepsy or just learning, Mathilda's story is sure to inspire and enlighten. From her family dynamics to her personal thoughts on privacy and public attention, Mathilda shares her unique perspective for the first time. Join us for this inspiring episode that promises to educate, move, and resonate with anyone touched by narcolepsy. Chapter Timestamps (03:00) - Mathilda's Early Diagnosis (07:00) - Reading "Waking Mathilda" (17:00) - Maintaining Privacy and Self-Identity (21:00) - Family Dynamics (25:00) - Public Speaking and Sharing Her Story (30:00) - Final Thoughts Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences. Follow us on Social Media for updates: Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast ***If you find these symptoms relatable, please seek medical advice.***…

Narcolepsy Navigators Podcast

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Raising a Narcoleptic Dog: Toast’s Story 1:19:06

for 25 weeks siden1:19:06

1:19:06

Join us on this heartwarming episode of Narcolepsy Navigators as we welcome our special guests Laura, an experienced animal foster parent from Illinois, and her narcoleptic dog, Toast. From being a breeder dump to becoming a beloved family member, Laura's journey is filled with challenges, adaptations, and the joy of raising a special needs pet. Laura recounts her initial struggles with understanding Toast's condition, the unique measures taken to manage his narcolepsy, and the joyous connections he's fostered within their community. Laura provides valuable insights into daily routines designed to manage Toast's cataplectic attacks, from utilizing white noise at bedtime to specialized feeding techniques. Gated stairs, supervised outdoor activities, and puzzle bowls are just a few of the adjustments that have helped Toast thrive. Laura emphasizes the importance of exposing Toast to various environments, despite criticism, to better manage his triggers. This discussion highlights the significance of allowing special needs pets to live fulfilling lives and the gradual training required for them to handle their triggers effectively. We also touch on the broader implications and common misconceptions surrounding narcoleptic pets, advocating for greater awareness and empathy. As we wrap up, we focus on the broader narcoleptic community and the quality of life for both humans and animals with narcolepsy and cataplexy. Laura shares her experiences and the profound joy that special needs pets bring into our lives, dispelling common misconceptions and advocating for awareness. We explore the supportive role of social media, the potential for Toast to become a therapy dog, and the critical importance of community support and shared experiences. Tune in for an inspiring conversation that champions understanding and compassion for all beings with special needs. Chapter Timestamps (00:10) - Narcolepsy Navigators (08:46) - Managing Narcolepsy in Dogs (17:00) - Exploring Narcolepsy in Dogs (23:40) - Quality of Life for Narcoleptic Dog (31:36) - Cataplexy and Narcolepsy in Humans (36:41) - Rescuing Special Needs Animals (49:22) - Expansion of Narcoleptic Dog Community (55:46) - Supporting Animals With Special Needs Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences. Follow Toast on Social Media: Instagram : @toastthenarcoleptic Follow us on Social Media for updates: Instagram : https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook : https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn : https://www.linkedin.com/company/narcolepsy-navigators-podcast ***If you find these symptoms relatable, please seek medical advice.*** nBmRTQygWbjY4cnY16sx…

Narcolepsy Navigators Podcast

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Sara: Dreams Interrupted 1:02:16

for 28 weeks siden1:02:16