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Sickle Cell Disease: The Patient Perspective featuring Alyssa Johns, RN
Manage episode 372192727 series 3474372
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Welcome everyone to the Melanin Initiative! “In healthcare, there is often too much information and not enough time. Here at The Melanin Initiative, we avoid TMI by breaking things down into language you can understand, we create a safe space to ask your questions, and share our nursing perspective without taking too much of your time.
Today we’ll be talking about sickle cell disease from the patient perspective and what it means to live with chronic pain, with emphasis on disparities in pain management.
By the end of the show, we hope you’ll be able to:
-Talk about what is sickle cell disease
-Name risk factors for getting sickle cell (genetics)
-Discuss diagnosis and treatment options
-Understand what it’s like to live with chronic pain
- Disparities in pain and what clinicians can do to improve
Resources:
-Sickle cell disease: What you need to know https://www.youtube.com/watch?v=qK5H9fPkltc
-Sickle cell disease: diagnosis, treatment, pregnancy, and what it's like ot live with SCD per the National Institutes of Health https://www.nhlbi.nih.gov/health/sickle-cell-disease
-Sickle Cell Disease Foundation https://www.scdfc.org/community-education
- American Nurses Association Continuing Education: Caring for Individuals with Sickle Cell Disease (1.5 contact hours. Course & CNE Credit Expiration: 06/01/2024) https://www.nursingworld.org/continuing-education/caring-for-individuals-with-sickle-cell-disease/
- For Nurse Practitioners: Sickle cell anemia Continuing Education (expires Dec 31, 2024) https://www.statpearls.com/nursepractitioner/ce/activity/684944
- For clinicians: Sickle Cell Disease Coalition, training and professional education http://www.scdcoalition.org/priorities/training.html
Stay in touch!
Email: tmi.melanin@gmail.com
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Disclaimer
*This show is for educational purposes only. The opinions expressed are our opinions alone, they are not a representation of any of our affiliations. If you are experiencing a medical emergency, you should seek medical attention and medical guidance from your healthcare provider.
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