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One Day You Will be on the Other Side

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Manage episode 421386219 series 3294266
Indhold leveret af Raising Rare. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Raising Rare eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

On this episode we talk to Michelle Fruhschien a mom of two, Noah and Hailey(Jordan Syndrome).

The moment she was born, Michelle says she knew it in her bones that something was different about her daughter even though she didn’t start seeing symptoms for another two months. Over the next few months, Michelle spent a lot of her time googling, asking others for their opinions and was eventually able to see an Ophthalmologist who noticed an issue and suggested seeing Geneticist and then a neurologist after a misdiagnosis.

Michelle has built a supportive community for herself through social media. In the beginning of her own journey a friend told Michelle that she would get through this and eventually would be the stranger giving hope to a newly diagnosed family. Listen along with us while we hear about how important her community has been and the grief and joy that has accompanied it.

Learn More:

mamabearforrare.com

jordansguardianangels.org

Mentioned in this episode:

Invitation to Check Out The Atlas

The Atlas

  continue reading

89 episoder

Artwork
iconDel
 
Manage episode 421386219 series 3294266
Indhold leveret af Raising Rare. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Raising Rare eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

On this episode we talk to Michelle Fruhschien a mom of two, Noah and Hailey(Jordan Syndrome).

The moment she was born, Michelle says she knew it in her bones that something was different about her daughter even though she didn’t start seeing symptoms for another two months. Over the next few months, Michelle spent a lot of her time googling, asking others for their opinions and was eventually able to see an Ophthalmologist who noticed an issue and suggested seeing Geneticist and then a neurologist after a misdiagnosis.

Michelle has built a supportive community for herself through social media. In the beginning of her own journey a friend told Michelle that she would get through this and eventually would be the stranger giving hope to a newly diagnosed family. Listen along with us while we hear about how important her community has been and the grief and joy that has accompanied it.

Learn More:

mamabearforrare.com

jordansguardianangels.org

Mentioned in this episode:

Invitation to Check Out The Atlas

The Atlas

  continue reading

89 episoder

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