))
Quality of Life Measures
Manage episode 312495020 series 3236617
Indhold leveret af David Cunnington and SCN2A Australia. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af David Cunnington and SCN2A Australia eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.
Measuring quality of life is important, particularly in clinical trials, to capture the broader impacts of treatment beyond just measuring seizures.
To help understand what outcome measures are and why they are important to spoke to Dr Jenny Downs, Program Head of Disability Research at the Telethon Kids Institute in Perth.
You can listen to and subscribe to the SCN2A Insights podcast via Apple Podcasts, Spotify, and Google Podcasts or in your podcast app.
Links:
- Information on Quality of Life Inventory-Disability (QI-Disability)
- Validation study of QI-Disability
- Want to help developing quality of life measures for children with genetic epilepsy?
See omnystudio.com/listener for privacy information.
28 episoder
Del
