160: An Interview With Heather Landau, MD, On The Latest Therapies For Amyloidosis Rare Care podcast

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Together, we're redefining what it means, looks and feels like, to be doing "woman's work" in the world today. With confidence and the occasional rant. From boardrooms to studios, kitchens to coding dens, we explore the multifaceted experiences of today's woman, confirming that the new definition of "woman's work" is whatever feels authentic, true, and right for you. We're shedding expectations, setting aside the "shoulds", giving our finger to the "supposed tos". We're torching the old playbook and writing our own rules. Who runs the world? You decide. Learn more at nicolekalil.com

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160: An Interview With Heather Landau, MD, on the Latest Therapies for Amyloidosis

for 9 dage siden 17:03

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Indhold leveret af Rare Care Podcast. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Rare Care Podcast eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews oncologist-hematologist Heather Landau, MD, of Sloan Kettering Memorial Cancer Center in New York City, for National Amyloidosis Awareness Month.

… continue reading

170 episoder

#Science #Fitness #Medicine #Rare Care

Rare Care Podcast

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160: An Interview With Heather Landau, MD, on the Latest Therapies for Amyloidosis

Rare Care Podcast

published for 9 dage siden

Del

MP3•Episode hjem

Indhold leveret af Rare Care Podcast. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Rare Care Podcast eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews oncologist-hematologist Heather Landau, MD, of Sloan Kettering Memorial Cancer Center in New York City, for National Amyloidosis Awareness Month.

… continue reading

170 episoder

#Science #Fitness #Medicine #Rare Care

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Rare Care Podcast

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161: An Interview With Retired NFL Athlete and Amyloidosis Patient Advocate Art Still 17:03

for 2 dage siden17:03

17:03

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Art Still, former defensive end for the Kansas City Chiefs and an NFL Hall of Famer who's now a patient advocate dedicated to raising awareness about amyloidosis.

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160: An Interview With Heather Landau, MD, on the Latest Therapies for Amyloidosis 17:03

for 9 dage siden17:03

17:03

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews oncologist-hematologist Heather Landau, MD, of Sloan Kettering Memorial Cancer Center in New York City, for National Amyloidosis Awareness Month.

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Rare Care Podcast

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158: An Interview With Hereditary Angioedema Expert Dr. Timothy Craig 14:19

for 16 dage siden14:19

14:19

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Timothy Craig, DO, a tenured professor of medicine, pediatrics and biomedical sciences at Pennsylvania State University in Hershey. Dr. Craig has been researching hereditary angioedema for 30 years.

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158: An Interview With Dr. Sangeetha Venugopal on the relationship between smoking and myelodysplastic syndromes (MDS) 12:08

for 23 dage siden12:08

12:08

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sangeetha Venugopal, MD, assistant professor of clinical medicine at the University of Miami's Sylvester Comprehensive Cancer Center. Dr. Venugopal speaks on how smoking worsens outcomes for patients with a group of blood cancers known as myelodysplastic syndromes (MDS).…

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157: An Interview With Andrea Renzi, a Patient Advocate for Women Affected by HDFN 12:15

for 4 weeks siden12:15

12:15

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Andrea Renzi, a New Hampshire mother and patient advocate whose family has been affected by hemolytic disease of the fetus and newborn (HDFN).

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156: An Interview With Dr. James Bussel on Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT) 13:27

for 5 weeks siden13:27

13:27

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews James Bussel, MD, emeritus professor of pediatrics, medicine, and obstetrics and gynecology at New York's Weill Cornell Medicine. The topic of their discussion is nipocalimab as a potential treatment for fetal and neonatal alloimmune thrombocytopenia (FNAIT).…

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155: An Interview With Rigoberto Garcia, Executive Director of the Hemophilia Foundation of Southern California 15:24

for 6 weeks siden15:24

15:24

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rigoberto Garcia, executive director of the Hemophilia Foundation of Southern California, about the difficulty minorities—especially undocumented Hispanics—have in accessing treatment for their bleeding disorders.

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154: An Interview With AATD Patient Kristin Hatcher of the Global Liver Institute 13:16

for 7 weeks siden13:16

13:16

Larry Luxner, senior correspondent for Rare DIsease Advisor, interviews Kristin Hatcher, director of pediatric and rare diseases at the Global Liver Institute. Hatcher has both alpha-1 antitrypsin deficiency (AATD) and Von Willebrand disease, a rare clotting disorder.

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153: An Interview With Terry Jo Bichell, PhD, Founder and Director of CombinedBrain 15:31

for 8 weeks siden15:31

15:31

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Terry Jo Bichell, PhD, founder and director of CombinedBrain, which advocates for patients with 110 neurogenetic diseases. Dr. Bichell is part of a panel that's studying how the US Food and Drug Administration can do a better job of speeding up clinical trials and becoming more transparent about its decisions.…

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152: An Interview With Erin Collins, Founder of the Chasing Rainbows Foundation 15:23

for 10 weeks siden15:23

15:23

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Erin Collins, founder of the Chasing Rainbows Foundation in North Carolina's Outer Banks. The charity raises awareness of HDFN and other rare pregnancy-related diseases.

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151: An Interview With NMOSD Expert Dean Wingerchuk, MD, of the Mayo Clinic 10:27

for 10 weeks siden10:27

10:27

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Dean Wingerchuk, MD, speaks on the potential for treating neuromyelitis optica spectrum disorder (NMOSD) with stem-cell therapy.

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150: An Interview With Beloved Huntington Disease Activist Jimmy Pollard 12:17

for 11 weeks siden12:17

12:17

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jimmy Pollard, who for the past 38 years has advocated on behalf of people around the world affected by Huntington disease.

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149: An Interview With Clinical Psychologist Rosalind Kalb, PhD, of Can Do-MS 13:55

for 12 weeks siden13:55

13:55

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews clinical psychologist Rosalind Kalb, lead senior programs consultant for Can-Do MS, a Colorado-based nonprofit health and wellness organization.

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148: An Interview With Huntington Disease Patient Activist Tanita Allen 11:16

for 13 weeks siden11:16

11:16

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Tanita Allen, a Black woman with Huntington disease who has made it her mission to increase awareness about the disorder and its devastating impact on patients regardless of their racial or ethnic background.

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147: An Interview With Jean Elwing, MD, a Pulmonary Hypertension Expert at the University of Cincinnati 13:46

for 15 weeks siden13:46

13:46

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jean Elwing, MD, a professor of medicine and director of the Pulmonary Hypertension Program at Ohio's University of Cincinnati.

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