Patient Innovations podcast

58:59

What is Long COVID—and why does it persist for some people but not others? Why do symptoms vary so widely—from fatigue and brain fog to shortness of breath and heart palpitations? And how are clinicians and public health leaders working to better understand and support those affected? In this episode of Patient Innovations , Rashmi and Mary kick off the new season diving into one of the most complex health challenges to emerge in recent years— Long COVID , a condition with no known standard of care and a growing need for awareness, research, and compassion. Our guests bring deeply personal and professional perspectives to this evolving condition: Senator Lindsey Port , Minnesota State Senator, shares her lived experience navigating life, work, and treatment with Long COVID—and the struggles she’s faced with insurance coverage and care access. Dr. Ruby Tam , physician with the ME/CFS Clinic , runs a free clinic that offers a clinical perspective on what she’s seeing among patients, how her team helps them manage symptoms, and why treating Long COVID remains such a challenge. Kate Murray , from the Minnesota Department of Health , discusses one of the nation’s first statewide public health initiatives focused on Long COVID research and awareness—and the power of collaboration in driving progress. Key Takeaways: Long COVID is real—and it’s life-altering for many. While symptoms vary, the most common include fatigue, brain fog, shortness of breath, and post-exertional malaise. For some, recovery is slow and unpredictable. Be your own champion. Patients often face skepticism or delayed diagnosis. Listen to your body, document your symptoms, and connect with clinicians who understand post-viral conditions. If one provider isn’t listening—find another, and then another. Find your community. Join care and support groups to learn, connect, and navigate insurance or access challenges. Long COVID remains widely misunderstood and under diagnosed—but community can help bridge those gaps. Certain groups are more affected. Women, Hispanic and Latino communities, older adults, and those with underlying health conditions are at higher risk. Stressful living conditions can also worsen symptoms, as stress often manifests as inflammation. Innovation and collaboration are key. Minnesota’s public health initiatives and clinical partnerships are leading the way in building awareness, research, and resources for those living with Long COVID. There’s a long road ahead, but progress is happening—join the movement and access available support. Links & Resources: Minnesota Department of Health — Long COVID Resources: https://www.health.state.mn.us/diseases/longcovid CDC Long COVID Overview: https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects ME/CFS Clinic Information: https://www.mecfsclinicmn.org #LongCOVID #PatientInnovations #HealthcareMN #PostCOVIDCare #PublicHealth #ChronicIllness #HealthEquity #PatientStories #HealthcareInnovation #Resilience…

1
Multiple Sclerosis (MS) – Living, Treating, and Curing Together 54:34

for 15 weeks siden54:34

54:34

In this episode of Patient Innovations , co-hosts Mary MacCarthy and Rashmi Kandwal explore Multiple Sclerosis (MS)—a complex neurological disease that affects nearly 3 million people globally, including over 1 million Americans. MS disproportionately impacts women, and studies show higher prevalence in northern states like Minnesota, which has the highest rates in the country. Guests include: Mary Johnson , MS patient and advocate Dr. Jessica Stulc , Director of MS Treatment & Research, Minneapolis Clinic of Neurology Kathleen O’Donnell , President, Upper Midwest Chapter, National MS Society Together, they shed light on early symptoms, lived experiences, the current state of MS research, and the power of advocacy, partnerships, and community in creating hope for those impacted by MS.…

1
Spinal Cord Injury (SCI): Resilience, Recovery & Neurotech 43:29

for 22 weeks siden43:29

43:29

In this powerful episode of Patient Innovations , co-hosts Mary MacCarthy and Rashmi Kandwal go beyond stats and symptoms to explore the lived experience of spinal cord injury—and the groundbreaking technologies transforming recovery. Nearly 18,000 people in the U.S. are diagnosed with a spinal cord injury each year. Today’s episode features two voices at the forefront: a hockey player's unshakable will and a scientist's drive to innovate. Featured guests: Jack Jablonski – Former Minnesota hockey standout and current LA Kings digital media specialist. Jack shares how his life changed after a 2011 spinal cord injury—and how he’s advancing recovery through his personal journey and the Jack Jablonski Foundation. Dr. Parag Gad – CEO and Co-Founder of SpineX , Dr. Gad explains how his team’s non-invasive neuromodulation therapies (like SCONE™) are helping patients regain function—and what FDA Breakthrough Device designation means for the future of care. In this episode, you’ll hear about: Living with and training through paralysis How neuromodulation is redefining recovery Jack’s mission to help others BEL13VE The hope that drives patients and innovators forward Want to collaborate or sponsor? Email rashmi@healthcare.mn. Next up: Multiple Sclerosis—closing the gap in care. Support spinal cord injury research through the Jack Jablonski Foundation . Every donation fuels progress toward life-changing breakthroughs. #SpinalCordInjury #Neurotech #JackJablonski #PatientStories #ParalysisRecovery #HealthcareInnovation #SCI #SpineX #PatientInnovations #HealthcareMN #BEL13VE…

1
Heart Health: Heart Valve Innovations 43:55

for 25 weeks siden43:55

43:55

In this spring episode of Patient Innovations , co-hosts Mary MacCarthy and Rashmi Kandwal explore the vital role heart valves play in keeping us alive—and what happens when they don’t work as they should. With 2.5% of the U.S. population affected by heart valve disease and 40,000 babies born each year with congenital heart defects, the need for innovation is more urgent than ever. Featured guests: Kris Bauerschmidt , entrepreneur and medical device leader, shares his journey receiving a mechanical heart valve and what life is like post-surgery. Dr. Maan Jokhadar , Cardiologist at Mayo Clinic, explains how heart valve care has evolved, when to repair vs. replace, and why anticoagulants like Warfarin are still necessary. Dr. Mayra Guerrero , Mayo Clinic Interventional Cardiologist and board member of the Heart Valve Society , discusses global collaboration in research and what innovations give her hope. In this episode you will hear about: Living with a mechanical valve Evolving heart valve treatments Research priorities and future tech Why heart health starts with awareness Have ideas on collaboration or want to sponsor Patient Innovations? Reach out to rashmi@healthcare.mn . Next up: spinal cord injuries—featuring a Minnesota hockey legend's powerful recovery story. #HeartValveHealth #Cardiology #PatientStories #HealthcareInnovation #MayoClinic #HeartValveSociety #PatientInnovations #HealthcareMN…

1
Sleep Apnea 51:16

for 31 weeks siden51:16

51:16

In this episode of Patient Innovations , we hear from Robert J. Proulx , who is receiving care for sleep apnea. Then Dr. Runji Varghese, a sleep medicine physician at Hennepin Healthcare and Medical Director at the Minnesota Regional Sleep Disorders Center, and Sarah Chiapetta , head of product at GEM Health in White Bear Lake, Minnesota, share clinical information and innovation from their organizations. For resources and support, check out the American Sleep Apnea Foundation at https://www.sleephealth.org/ . You can learn more about Dr. Varghese's center at https://www.hennepinhealthcare.org/specialty/minnesota-regional-sleep-disorders-center/ . To learn more about the GEM Health solution go to https://www.mygemsleep.com/ . #sleepapnea #PatientAdvocacy #PatientInnovationsPodcast…

1
ALS / Lou Gehrig’s Disease 56:20

for 35 weeks siden56:20

56:20

In this episode of Patient Innovations , we dive into Amyotrophic Lateral Sclerosis (ALS) , also known as Lou Gehrig’s disease —a progressive neurodegenerative condition that affects nerve cells in the brain and spinal cord. Joining us in the studio are: Mark Bearman – An ALS patient with a genetic mutation, sharing his personal journey. Dr. Sam Maiser – Chair of the Department of Neurology at Hennepin Healthcare, offering medical insights. Jennifer Hjelle – Chief Community Engagement Officer for the ALS Association, discussing advocacy and resources. ALS, which currently has no known cure, often begins with muscle weakness in the hands, feet, arms, or legs before progressing to other parts of the body. As nerve cells die, movement becomes more difficult, eventually impacting chewing, swallowing, speaking, and breathing . The Ice Bucket Challenge became a historic movement, raising millions of dollars for ALS research. These efforts contributed to the development of the first drug showing significant potential in treating genetically induced ALS. Learn more, find resources, and support advocacy efforts at The ALS Association – dedicated to finding a cure for ALS.…

1
Organ Transplant 1:02:20

for 39 weeks siden1:02:20

1:02:20

In this episode, we explore the journey of organ transplantation—what it takes to make transplants possible, the latest advancements in the field, and the powerful stories of those whose lives have been forever changed. Our guests include: Ben Williams – Kidney transplant recipient, NFL Players Association Chapter President, and former US NFL football player (including the Minnesota Vikings) who transitioned to the NFL Europe/World Football League. Ben Williams Foundation is on a mission to educate on kidney disease: https://benwilliamsfoundation.org/ Dr. Vanessa Humphreville, MD, FACS – Liver, kidney, and pancreas transplant surgeon and associate professor at the University of Minnesota School of Medicine. Kate Kishish – Transplant coordinator at LifeSource , one of 56 Organ Procurement Organizations (OPOs) in the country. LifeSource serves the second-largest geographical region, covering Minnesota, North Dakota, South Dakota, and parts of western Wisconsin, with a mission to save and heal lives through organ donation and transplantation. Organ transplantation is a life-saving procedure in which a donor’s organ is surgically placed into a recipient whose own organ has failed or been damaged. While thousands of lives are transformed each year through organ donation, the need for organs continues to far exceed the available supply. Join us as we explore the science, the human impact, and the critical need for awareness and action in organ transplantation. Learn more about how to become a donor at LifeSource .…

1
Understanding Depression: Stories of Struggle, Support, and Strength 55:45

for 44 weeks siden55:45

55:45

This episode of Patient Innovations delves into the realities of living with depression, featuring personal stories, expert insights, and organizational perspectives. Guests: Julie Berggren shares her journey with depression, the challenges she faced, and the tools that have supported her mental health. Dr. Talee Vang , award-winning psychologist and Vice President of Health Equity at Hennepin Healthcare, emphasizes the role of cultural sensitivity, equity, and access in effective mental health care. Shannon Stauff , COO of Cadre, a mental health app, discusses her journey in the mental health space and how Cadre, a MN based startup is making a difference in addressing depression and other mental health issues…

1
Multiple Myeloma 55:05

for 47 weeks siden55:05

55:05

In this episode, we explore Multiple Myeloma, a rare and complex blood cancer, with insights from experts and a patient navigating the journey firsthand. Together, they share the challenges of diagnosis, advancements in treatment, and hope through innovative care. Ron Thiessen – A patient sharing his courageous story of resilience. Dr. Joseph Maakaron – A leading oncologist, Assistant Professor of Medicine at the University of Minnesota, and Clinical Investigator in the Bone Marrow Transplant Division and Stem Cell Institute. Jeff Liter – CEO of Luminary Therapeutics , a clinical-stage company transforming care with allogeneic cellular therapies. This conversation highlights the strength of the Multiple Myeloma community and the transformative impact of cutting-edge research and personalized care. #MultipleMyeloma #BloodCancerAwareness #PatientInnovations #HealthcareAdvances Additional Resources: The MMRF | Multiple Myeloma Research Foundation Leukemia & Lymphoma Society | Blood Cancer Leaders | LLS Lymphoma Research Foundation | Research. Community. Cure…

1
Diabetes 58:03

for 1 year siden58:03

58:03

In this episode, we delve into the realities of diabetes with three insightful guests. Angie Kruger shares her journey of managing Type 2 Diabetes (T2D), Dr. Pankaj Shah, an endocrinologist at Mayo Clinic, offers expert insights into the medical aspects and challenges of diabetes care, and Stacey Pugh, CEO of Endogenex, discusses innovations in T2D treatment and Minnesota's role as a medtech hub. Together, they explore the importance of lifestyle adjustments, early detection, and the latest therapies transforming diabetes management. Tune in for valuable insights on the future of diabetes care and tips for living well with T2D. Disclaimer: This episode is intended to inform and explore innovations; it does not promote or endorse any specific products or companies.…

1
Sickle Cell Disease (SCD) 54:17

for 1 year siden54:17

54:17

In this episode of Patient Innovations , we explore the complexities of Sickle Cell Disease (SCD) through the lens of personal experience, medical expertise, and community advocacy. Our guests include Dennik McBride , a courageous sickle cell warrior, who shares her personal journey living with the condition. Dr. Ashish Gupta from the University of Minnesota, Dr.Gupta largely cares for children and young adults with sickle cell disease who need transplant based therapies. In the episode he provides insight into the latest research and treatment advancements;This episode highlights that there are many challenges, including the implementation of standard guidelines, for adults with sickle cell disease. These include, but not limited to, access to primary and specialty care, transition of care as well as comprehensive sickle cell care. We also have Rae Blaylark , Executive Director of the Sickle Cell Foundation of MN, who highlights the importance of community support, advocacy, and resources for those affected by SCD. Together, they discuss the challenges patients face in navigating healthcare, the impact of SCD on marginalized communities, and the promising future of treatments like gene therapy and bone marrow transplants. For resources and support, The Sickle Cell Foundation can be accessed at www.sicklecellmn.org . You can calso follow them @sicklecellmn on LinkedIn, FB, IG and Twitter (X). #SickleCellAwareness #HealthcareEquity #PatientAdvocacy #PatientInnovationsPodcast #SickleCellFoundationMN #GeneTherapy #HealthDisparities…

1
This Podcast Journey so Far 20:34

for 1 year siden20:34

20:34

In this special episode of Patient Innovations , we're flipping the script! Our hosts, Rashmi Kandwal and Mary MacCarthy, step into the guest spotlight as our production engineer, Sam Devine, takes on the role of interviewer. Join us as we delve into the motivations and challenges behind launching the Patient Innovations podcast. Rashmi and Mary share personal stories, discuss the highs and lows of their podcasting journey, and offer a behind-the-scenes look at what it takes to bring healthcare innovation stories to life. Whether you're a longtime listener or new to our show, this episode provides an intimate glimpse into the passion and dedication driving Patient Innovations . Tune in to learn more about the dynamic duo at the heart of the podcast and their vision for the future. Key Topics: The inspiration behind starting Patient Innovations Personal and professional challenges faced by the hosts Memorable moments and lessons learned from past episodes Future aspirations and upcoming topics for the podcast Guests: Rashmi Kandwal, Co-Host Mary MacCarthy, Co-Host Sam Devine, Production Engineer (Interviewer)…

1
Addiction and Substance Abuse 50:12

for 1 year siden50:12

50:12

In this episode, hosts Rashmi and Mary dive deep into the critical issues of addiction and substance abuse, exploring various aspects of mental health. They are joined by three distinguished guests: Duffy Fallon A person in recovery, Duffy shares his personal journey and insights into how his experiences have shaped his work in the mental health field. Sue Abderholden The Executive Director of NAMI Minnesota , Sue brings her extensive expertise and advocacy experience to discuss the broader impact of mental health issues on communities and the importance of support systems. NAMI MN offers both online and in-person support groups for adults living with Mental health and their families. Dr. Jungjin Kim Mental Health and Addiction Service Line Chief at the University of Minnesota Medical School , Dr. Kim provides a clinical perspective on addiction, discussing treatment options, research advancements, and the challenges faced by healthcare providers.…

1
Alzheimer's Disease 59:28

for 2 years siden59:28

59:28

In April 2024 Mary MacCarthy and Rashmi Kandwal focused on learning about care and innovation in Alzheimer's Disease. They talked with Kanada Yazbek who has been living with dementia for many years, Susan Perriott who is the CEO of the Alzheimer's Association of Minnesota and North Dakota and Dr. Joseph Gaugler , Director of the University of Minnesota's Center for Healthy Aging and Innovation, School of Public Health. To contact Kanada or the Alzheimer's Association of Minnesota or North Dakota, email mnnd-info@alz.org . Call them anytime day or night at 800-272-3900 for help and to get connected to many resources. To contact Dr. Joseph Gaugler and team, email fltz@umn.edu . To access the Minnesota Senior Linkage Line, go to https://mn.gov/senior-linkage-line/ To register for the free Caring for people with Memory Loss conference at the University of Minnesota on June 1, 2024: https://www.sph.umn.edu/events-calendar/caring-for-person-with-memory-loss-conference/ #alzheimers #medicalalley #healthcaremn #memoryloss…

1
Colorectal Cancer 42:39

for 2 years siden42:39

42:39

Dive into a discussion on Colorectal Cancer, the 3rd most common cancer in the US and worldwide. In this episode of Patient Innovations , Rashmi and Mary speak with three remarkable guests: Meghan Wallace : A recent survivor, Meghan shares her journey from diagnosis to treatment and being cancer-free. Dr. Subree Subramanian : Professor in the Department of Surgery at the University of Minnesota and co-founder/CSO at EV Therapeutics Inc. Dr. Subramanian discusses cutting-edge immunotherapies to boost the patient’s own immune system. Dr. Ajay Prakash : An award-winning medical oncologist trained at NYU. Dr. Prakash sheds light on existing therapeutic pathways, patient experiences, and the future of colorectal cancer research. Tune in to explore the latest innovations and research in colorectal cancer treatment. #colorectal cancer #healthcareMN #cancerdrugs #patientjourney #Immunotherapy #innovations #UniversityofMN #early screening #devinefoxproductions…

Patient Innovations

1
Trailer 6:13

for 2 years siden6:13