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Dear NHS, Don't Kill Karen Gordon

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Manage episode 434742527 series 3566652
Indhold leveret af Whitney Dafoe. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Whitney Dafoe eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

A Severe ME/CFS Patient in the UK named Karen Gordon went to the Conquest Hospital Hastings when her Jtube broke in hopes of getting a new one installed. Instead, the hospital has refused to give her a new Jtube or let her go home with Total Parenteral Nutrition (TPN), holding her hostage at the hospital for months. They have now given her an ultimatum that she must decide within 48 hours between being sent 100 miles to the St Mark’s Hospital in London to be re assessed for GI issues by Doctors who know nothing about ME/CFS and do not follow the NICE guidelines and therefore will not give her a Jtube. Or they will discharge her with no TPN to starve to death at home. Either option will kill her. This letter is an urgent attempt to make the hospital aware that they will kill her so they will change course and send Karen home with a PEG/Jtube or TPN so she can live.

✏️ My ME/CFS Blog

❓What is ME/CFS?

👤 My Story

📄 ME/CFS Resources

🙏 Donate to ME/CFS Research

  continue reading

12 episoder

Artwork
iconDel
 
Manage episode 434742527 series 3566652
Indhold leveret af Whitney Dafoe. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Whitney Dafoe eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

A Severe ME/CFS Patient in the UK named Karen Gordon went to the Conquest Hospital Hastings when her Jtube broke in hopes of getting a new one installed. Instead, the hospital has refused to give her a new Jtube or let her go home with Total Parenteral Nutrition (TPN), holding her hostage at the hospital for months. They have now given her an ultimatum that she must decide within 48 hours between being sent 100 miles to the St Mark’s Hospital in London to be re assessed for GI issues by Doctors who know nothing about ME/CFS and do not follow the NICE guidelines and therefore will not give her a Jtube. Or they will discharge her with no TPN to starve to death at home. Either option will kill her. This letter is an urgent attempt to make the hospital aware that they will kill her so they will change course and send Karen home with a PEG/Jtube or TPN so she can live.

✏️ My ME/CFS Blog

❓What is ME/CFS?

👤 My Story

📄 ME/CFS Resources

🙏 Donate to ME/CFS Research

  continue reading

12 episoder

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