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Danny Chats Ep15 Wilson's Disease; Special Guest Rhonda Rowland
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Danny Chats Episode 15 features special guest Rhonda Rowland.
In this episode Rhonda tells me about her own experience of being diagnosed with Wilson's Disease and the medication she is now on to control her copper levels. Rhonda is a board member of the Wilson's Disease Association in America so we talk a bit about that and also the great work she has been doing to put a book together about Wilson's Disease.
Rhonda travelled to the UK to talk to Dr Walsh the man that invented the first medication for Wilson's Disease patients and also Dr Wilsons son plus the first person that was ever treated with the medication, Penecillamine.
You can see the discussions with Dr Walsh and the others in this great documentary that Rhonda made, The Story Of Wilson's Disease - https://www.youtube.com/watch?v=17bV1...
We also discuss new medications for WD patients and the possibilities of Gene therapy in the future to cure Wilson's all together, exciting times. You can find Rhonda on Instagram @rhondarowlandr2
If you would like to join me on an episode or you have any questions please feel free to find me on Facebook or Instagram. I have also added a link to my blog where I talk more about my life with Wilson's Disease and where that has lead me today.
Facebook - https://www.facebook.com/danny.hiles
Instagram - https://www.instagram.com/danny_hiles86/
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