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ARID1B Syndrome; Interview with CNN International Correspondent, Clarissa Ward
Manage episode 438934608 series 3310588
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summary
Clarissa discusses her experience as a parent of a child with ARID1B-related disorder and the challenges they face. She emphasizes the importance of routine and structure for children with special needs and the need for parents to take care of themselves. Clarissa also talks about the Foundation for ARID1B Research (FAR) and their efforts to raise money for research into potential treatments. She highlights the diversity of experiences within the special needs community and the importance of supporting and connecting with other parents. Clarissa shares her son's communication challenges and the various methods they have tried, including Proloquo2Go and picture exchange communication systems. In this conversation, Clarissa discusses her experiences as a parent of a child with ARID1B-related disorder and autism. She shares her journey of seeking a diagnosis, finding support, and navigating the challenges of raising a child with special needs. Clarissa emphasizes the importance of patience, acceptance, and finding balance as a parent. She also highlights the need for more awareness and resources for children with neurodevelopmental disorders. The conversation touches on topics such as communication methods, behavioral issues, and the differences in support systems between the UK and the US.
keywords
ARID1B-related disorder, special needs, routine, self-care, Foundation for ARID1B Research, communication challenges, Proloquo2Go, picture exchange communication system, ARID1B-related disorder, autism, diagnosis, support, challenges, patience, acceptance, balance, awareness, resources, communication methods, behavioral issues, UK, US
takeaways
- Routine and structure are essential for children with special needs.
- Parents of children with special needs should prioritize self-care.
- Connecting with other parents in the special needs community can provide valuable support and resources.
- Communication challenges can be addressed through various methods, such as assistive communication devices and picture exchange systems. Seeking a diagnosis opens the way for therapies and support for children with special needs.
- Patience and acceptance are key in raising a child with neurodevelopmental disorders.
- Finding balance between work life and home life is important for parents.
- Communication methods like picture pecs and visual aids can help improve understanding and reduce frustration.
- Behavioral issues can be managed through repetition, clear explanation, and redirection.
- There is a need for more awareness and resources for children with neurodevelopmental disorders.
- The support systems for special needs children differ between the UK and the US.
summary
Clarissa discusses her experience as a parent of a child with ARID1B-related disorder and the challenges they face. She emphasizes the importance of routine and structure for children with special needs and the need for parents to take care of themselves. Clarissa also talks about the Foundation for ARID1B Research (FAR) and their efforts to raise money for research into potential treatments. She highlights the diversity of experiences within the special needs community and the importance of supporting and connecting with other parents. Clarissa shares her son's communication challenges and the various methods they have tried, including Proloquo2Go and picture exchange communication systems. In this conversation, Clarissa discusses her experiences as a parent of a child with ARID1B-related disorder and autism. She shares her journey of seeking a diagnosis, finding support, and navigating the challenges of raising a child with special needs. Clarissa emphasizes the importance of patience, acceptance, and finding balance as a parent. She also highlights the need for more awareness and resources for children with neurodevelopmental disorders. The conversation touches on topics such as communication methods, behavioral issues, and the differences in support systems between the UK and the US.
keywords
ARID1B-related disorder, special needs, routine, self-care, Foundation for ARID1B Research, communication challenges, Proloquo2Go, picture exchange communication system, ARID1B-related disorder, autism, diagnosis, support, challenges, patience, acceptance, balance, awareness, resources, communication methods, behavioral issues, UK, US
takeaways
- Routine and structure are essential for children with special needs.
- Parents of children with special needs should prioritize self-care.
- Connecting with other parents in the special needs community can provide valuable support and resources.
- Communication challenges can be addressed through various methods, such as assistive communication devices and picture exchange systems. Seeking a diagnosis opens the way for therapies and support for children with special needs.
- Patience and acceptance are key in raising a child with neurodevelopmental disorders.
- Finding balance between work life and home life is important for parents.
- Communication methods like picture pecs and visual aids can help improve understanding and reduce frustration.
- Behavioral issues can be managed through repetition, clear explanation, and redirection.
- There is a need for more awareness and resources for children with neurodevelopmental disorders.
- The support systems for special needs children differ between the UK and the US.
https://www.arid1b.org/
Instagram: clarissawardcnn
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