Ep. 5 Consent, DNA databases, and misuse of a San Francisco rape victim's DNA.
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This week's discussion is all about consent and ethical use of genetic information, including DNA databases. I define and discuss what is meant by consent and informed consent and how it's related to the treatment of Henrietta Lacks and how her story triggered the development of ethical practices in medical science. What are the responsibilities of the forensic geneticist? The law enforcement investigator? What should you think about before volunteering a DNA sample...It's a big topic, and this is only the start if the discussion.
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Helpful links and to learn more about the topics covered in this episode:
- Genetic papers containing data from China’s ethnic minorities draw fire
- FBI Quality Assurance Standards
- ANAB guidance for professional responsibility
- Stats on sexual assaults – lack of reporting
- https://www.csofs.org/
- https://www.aafs.org/
- https://nij.ojp.gov/funding/informed-consent-requirements
- https://nij.ojp.gov/funding/common-rule
- https://www.law.cornell.edu/wex/fruit_of_the_poisonous_tree
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