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039 - Community, Advocacy, and the PFIC Network with Emily Ventura
Manage episode 441585511 series 3545243
Indhold leveret af Walter Perez. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Walter Perez eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.
In this episode of the It Matters podcast, Walter Perez converses with Emily Ventura, the executive director of the PFIC Network, supporting families affected by Progressive Familial Intrahepatic Cholestasis (PFIC), a rare liver disease. Emily shares her journey from nurse to advocate after her daughter's PFIC diagnosis, emphasizing the importance of community and resources. They discuss the network's growth, advocacy efforts, and the significance of collaboration within the rare disease community. Emily highlights the upcoming PFIC Awareness Day and encourages listeners to connect and support the cause through their website and social media. The episode underscores the power of community and effective leadership.
Connect with Emily
IG: pficnetwork
Connect with Walter
www.theleaderco.ca
IG: @theleaderco.inc
Facebook: The Leader Co.
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