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Indhold leveret af US Hereditary Angioedema Association. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af US Hereditary Angioedema Association eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.
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#BeyondHAE Digging Deeper Interview Series: I am a young adult with HAE (Mariel)

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Manage episode 357185095 series 2769674
Indhold leveret af US Hereditary Angioedema Association. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af US Hereditary Angioedema Association eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

Continuing with the #BeyondHAE Digging Deeper Interview Series, this month's episode is hosted by Youth Leadership Council member, Kobe who interviews Mariel, a young woman with HAE who talks about growing up with unexplained symptoms and her journey to finally getting a diagnosis in her 20s. She talks about how she has adjusted her outlook on life to find the positive in being part of the rare disease community. This episode is now available to watch in video format on Spotify.

This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, www.haea.org.

Thank you to our sponsors BioCryst and Takeda.

  continue reading

60 episoder

Artwork
iconDel
 
Manage episode 357185095 series 2769674
Indhold leveret af US Hereditary Angioedema Association. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af US Hereditary Angioedema Association eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

Continuing with the #BeyondHAE Digging Deeper Interview Series, this month's episode is hosted by Youth Leadership Council member, Kobe who interviews Mariel, a young woman with HAE who talks about growing up with unexplained symptoms and her journey to finally getting a diagnosis in her 20s. She talks about how she has adjusted her outlook on life to find the positive in being part of the rare disease community. This episode is now available to watch in video format on Spotify.

This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, www.haea.org.

Thank you to our sponsors BioCryst and Takeda.

  continue reading

60 episoder

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