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Indhold leveret af Patrick McCartney and INTERNATIONAL ESSENTIAL TREMOR FOUNDATION. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Patrick McCartney and INTERNATIONAL ESSENTIAL TREMOR FOUNDATION eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.
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In 1943, 13-year-old Zuzana Justman and her family are sent to Theresienstadt, a transit camp and ghetto in occupied Czechoslovakia. While the Nazis claim Theresienstadt was a model ghetto with a thriving cultural life, Zuzana and her family face starvation, illness, and fear of the mysterious transports that take her loved ones away, never to return. Learn more at www.lbi.org/justman . Exile is a production of the Leo Baeck Institute, New York and Antica Productions. It’s narrated by Mandy Patinkin. This episode was produced by Rami Tzabar. Our executive Producers are Laura Regehr, Rami Tzabar, Stuart Coxe, and Bernie Blum. Our associate producer is Emily Morantz. Research and translation by Isabella Kempf. Sound design and audio mix by Philip Wilson. Theme music by Oliver Wickham. Special thanks to the German Federal Archives, the Guardian, Will Coley, The International Festival of Slavic Music for the use of their 2018 performance of Hans Krasa’s Brundibar, as well as Zuzana Justman for the use of her film, Voices of the Children. This episode of Exile is made possible in part by a grant from the Conference on Jewish Material Claims Against Germany, which is supported by the German Federal Ministry of Finance and the Foundation Remembrance, Responsibility and Future.…
Talking Essential Tremor
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Indhold leveret af Patrick McCartney and INTERNATIONAL ESSENTIAL TREMOR FOUNDATION. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Patrick McCartney and INTERNATIONAL ESSENTIAL TREMOR FOUNDATION eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.
Listen in to our conversations with experts in the field of essential tremor to learn about diagnosis, surgical options, coping techniques, ET research and much more.
…
continue reading
33 episoder
Marker alle som (u)afspillede ...
Manage series 2811616
Indhold leveret af Patrick McCartney and INTERNATIONAL ESSENTIAL TREMOR FOUNDATION. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Patrick McCartney and INTERNATIONAL ESSENTIAL TREMOR FOUNDATION eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.
Listen in to our conversations with experts in the field of essential tremor to learn about diagnosis, surgical options, coping techniques, ET research and much more.
…
continue reading
33 episoder
Wszystkie odcinki
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1 Talking about the Steadi-3 Tremor Glove 11:08
11:08
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Steadiwear will begin taking pre-orders for the third version of its tremor glove, Steadi-3 in October 2024. Steadiwear Co-Founder and CEO Mark Elias talks about the updates, which include a lighter weight and smaller size, in this podcast.
VILIM ball is a handheld mechanical therapeutic device that provides neuromodulation therapy to temporarily reduce hand tremor for patients with essential tremor. This is a conversation with creator Dr. Mantas Venslauskas, CEO of the Lithuanian-based company Vilimed . He talks about how VILIM ball works, how it was tested and warns against less expensive imitations. The company released VILIM ball for purchase in 2018 in European countries, then expanded distribution to the U.S. and other countries in 2023.…
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1 'Shaky Quaky Jake' Shines a Light on ET in Children 21:05
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Author Kelly Roberts talks about her children’s book “Shaky Quaky Jake” whose main character is a child with essential tremor (ET). Kelly’s overall message is “every child needs to be accepted and loved for who they are, as they are.”
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1 Using Assistive Technology Centers for ET Support 14:26
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People with essential tremor are always looking for assistive technology to enhance their quality of life. David Baker, director, Missouri Assistive Technology, talks about the services U.S. assistive technology centers provide in each state, including assistive device demonstrations and loans.
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1 Sharing Your Essential Tremor Diagnosis with Your Employer 11:36
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Essential tremor may cause physical limitations in the workplace. At what point should you inform your employer? Fred Gutermuth talks about his experience.
Dr. Brianna Matzke, assistant professor of music at Wilmington College, announced her essential tremor diagnosis as part of a commissioned arts project called TREMOR: The Response Project . She has commissioned artists and composers to create piano, visual art and multimedia exploring the lived experience of ET, but more importantly, ability and disability.…
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1 Spreading ET Awareness through the Miss New Hampshire Scholarship Program 11:55
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Jillian Mars has spent the past two years working to make an impact on essential tremor (ET) awareness. As a contestant in the Miss New Hampshire Scholarship Program she has adopted ET as her community service initiative, and has been educating others during appearances and speeches. She talks about her journey with ET.…
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1 Talking about the Brain Donor Project 19:06
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Tish Hevel, CEO of the Brain Donor Project , explains the process of becoming a brain donor. Brain donation is critical to the role of identifying treatments and cures for all kinds of brain disease, including essential tremor.
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1 Long-Term Impact of Focused Ultrasound on Essential Tremor 12:19
12:19
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Four to five years after undergoing focused ultrasound (FUS) to treat their essential tremor, patients are continuing to endure benefits. In this podcast, Dr. Rees Cosgrove, director of epilepsy and functional neurosurgery at the Brigham and Women’s Hospital in Boston, talks about the study and the enhancements made to FUS.…
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1 Study Documents the Effectiveness of Cala Trio 15:18
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Cala Trio continues to be an effective therapy for managing essential tremor, according to a recently released study by Cala Health . Liana Hennum, head of health economics outcomes research for Cala, talks about other positive outcomes revealed in this study.
Research shows that one of every 100 people on the planet has essential tremor (ET). This is one of the many results published in the article, “How Common is Essential Tremor? Update on the Worldwide Prevalence of Essential Tremor.” Learn more statistics in this podcast interview with co-author of the study, Dr. Elan Louis, professor and chair of the department of neurology at the University of Texas Southwestern Medical Center, Dallas.…
Much has happened in the field of tremors in the past 10+ years and a newly published book, “Tremors” brings it all together. It shares recent developments in understanding tremor pathology and genetics, as well as the clinical findings in treatment models. Listen to this conversation with one of the co-editors Dr. Claudia Testa, with the University of North Carolina School of Medicine.…
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1 A Conversation with ET Advocate Shakey Nan 18:24
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Her goal is to find one person every day to educate about essential tremor. She uses the name Shakey Nan, and posts videos on YouTube, TikTok, Facebook and Instagram, not only talking about it, but also showing it first-hand. She said she’s never known a day without ET, and raising awareness has made her less self-conscious and has given her back her life.…
Navy Veteran Peder Nelson is training for his second Cloudsplitter 100, a 100-mile ultramarathon. His goal is to raise awareness about essential tremor and support for the mission of the International Essential Tremor Foundation. Hear his ET story and learn how exercise helps him emotionally and physically. Follow his story and journey on his Difficult Destinations Facebook page, https://www.facebook.com/Jalap3dr0 .…
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1 Talking About Allevion's Wrist Worn Device for Treating ET 12:08
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Learn about Allevx , a neuromodulation wrist device for treating essential tremor, developed by Allevion Therapeutics. IETF Executive Director Patrick McCartney talks with Allevion’s CEO and Chairman Shawn Moaddeb and Board Certified Neurologist Dr. Neal Hermanowicz.
The Readi-Steadi Anti-Tremor Orthotic Glove System was developed to help patients gain control of their hand tremors. Creator Krista Madere, licensed occupational therapist and certified hand therapist, shares her story about this medical device that, on average, provides a 50 percent reduction in tremor.…
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1 Talking with Jazz Pharmaceuticals About an Investigational Drug for ET 15:22
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Jazz Pharmaceuticals is investigating a drug that acts to modulate the activity of t-type calcium channels associated with essential tremor. The investigational process and the work of Jazz is explained by staff members Michelle Baladi, senior director of global development, and Margaret Lee, head of neuroscience pharmacology.…
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1 Talking About the Steadi-Two Hand Stabilizing Glove 11:10
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Steadiwear has introduced a second version of its smart glove, the Steadi-Two, developed to stabilize hand tremors. CEO Mark Elias discusses upgrades made to this device and how it works, plus feedback the company has received from the essential tremor community.
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1 Talking About Voice Tremor with Musician Terri Hendrix 20:51
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Diagnosed with voice tremor and spasmodic dysphonia in 2019, singer-songwriter Terri Hendrix has come to realize that attitude is everything. She advises aspiring musicians with essential tremor to own the condition. Her management techniques include vocal exercises, medication and sometimes a shot of alcohol. Be sure to listen until the end because we share Terri's song "Love You Strong" off of her "Love You Strong" Album. The song talks about loving someone strong to help them get through difficult times.…
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1 Tracking Cognitive Changes in People with ET 15:59
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Dr. Elan Louis, professor and chair of neurology at University of Texas Southwestern Medical Center in Dallas, discusses the COGNET Study. More than six years ago, this research was started, following hundreds of ET patients to study their cognitive function over a span of time.
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1 Talking Essential Tremor with Lord Julian Fellowes 20:29
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Lord Julian Fellowes, English actor, novelist and screenwriter best known for creating the television series Downton Abbey, has lived with essential tremor for the past 10 years. He is credited for escalating awareness of ET by writing it into the Downton Abbey storyline. In this podcast, he talks about how having ET changed his career.…
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1 Talking About Deep Brain Stimulation with Abbott 17:54
17:54
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If you’re considering Deep Brain Stimulation therapy to help manage your essential tremor, what questions should you be asking? Learn this and more from this conversation with Dr. Binith Cheeran, movement disorders specialist and medical director for neurological therapies at Abbott Labs.
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1 Partnering with the American Brain Coalition for ET Advocacy 13:32
13:32
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Did you know that brain disease affects more people than heart disease and cancer combined? Katie Sale, executive director of the American Brain Coalition , talks about the mission and advocacy work of the ABC, which serves as an umbrella organization for more than 100 brain-related professional organizations and patient advocacy groups, including the IETF.…
Listen to this panel discussion with some of the IETF’s Essential Tremor Support Group leaders. Learn what motivated some of these leaders to start their group, the rewards and challenges of being a leader and how to get one started in your area.
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1 Talking About the Tremelo Hand Stabilizing Device 18:14
18:14
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He took real world technology used in industry and formatted it for human use to calm hand tremors. Hear how Dr. Leo Nguyen, associate professor of mechanical engineering at California State University, used his expertise to create the Tremelo hand-stabilizing device. He is the founder of Five Microns .…
Mark Honeyman went from being an only child to having 7 siblings and 37 nieces and nephews. Adopted at birth, he started a search for his birth parents several years ago to learn where his essential tremor came from. That led him on a journey with many twists and turns, and fascinating stories. He says having ET has humbled him and made him a better person. “And it’s led to so many insights that I’m profoundly grateful for it.”…
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1 Talking About a New Investigational Drug for ET 10:07
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Sage 324 is an oral investigational drug which is thought to enhance the activity of GABA receptors in the brain tremor, having the potential to modulate electrical fluctuations and reduce the abnormal movements in essential tremor. Listen to this podcast with Helen Colquhoun , VP of Development with Sage Therapeutics .…
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1 Talking about the DaTscan with GE Healthcare 14:32
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Learn how a DaTscan can help neurologists understand the cause of a patient’s tremors. GE Healthcare's Mark Hibberd, global head of medical services and chief medical officer of pharmaceutical diagnostics. explains.
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1 Talking ET with Scholarship Recipient Madison Young 12:29
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IETF scholarship recipient Madison Young talks about her initial essential tremor diagnosis and how she has learned to explain her condition to others. She expresses her gratitude to those who support the IETF’s scholarship program . “I love having the support of the community behind me,” she said.
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1 Talking About Focused Ultrasound with Insightec 22:26
22:26
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How does focused ultrasound work to help manage essential tremor? Listen to our interview with Dr. Arjun Desai, chief strategy and innovation officer with Insightec , a leader in this incisionless technology.
It’s a watch-like device that stimulates nerves in the wrist to interrupt, and therefore, calm tremors in the hands. Listen to this conversation about the Cala Trio with Cala Health CEO Renee Ryan.
Are you a good candidate for DBS therapy? What are the benefits and risks? Lisa Johanek, senior principal medical affairs scientist with Medtronic , answers these questions and more in our first Talking Essential Tremor podcast.
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