Straight from the Lungs helps to share real stories from real people affected by Cystic Fibrosis.
…
continue reading
These are Extra Breaths, coming to you straight from the lungs of Charles. In Episode 09 of Straight from the Lungs, Charles spoke about being in lockdown and trying to stay creative despite his industry being on hold. Here’s more from him. View Transcript Stay in touch by heading over to our website and following the show on Facebook, Twitter, and…
…
continue reading
These are Extra Breaths, coming to you straight from the lungs of Emma. In Episode 09 of Straight from the Lungs, Emma spoke about being in lockdown and using the time to take up running. Here’s more from her. View Transcript Stay in touch by heading over to our website and following the show on Facebook, Twitter, and Instagram.…
…
continue reading
These are Extra Breaths, coming to you straight from the lungs of Kate. In Episode 09 of Straight from the Lungs, Kate spoke about being in lockdown and finding it challenging to go back outside again. Here’s more from her. View Transcript Stay in touch by heading over to our website and following the show on Facebook, Twitter, and Instagram.…
…
continue reading
These are Extra Breaths, coming to you straight from the lungs of Kirsty. In Episode 09 of Straight from the Lungs, Kirsty spoke about being in lockdown with her two children with Cystic Fibrosis. Here’s more from her. View Transcript Stay in touch by heading over to our website and following the show on Facebook, Twitter, and Instagram.…
…
continue reading
These are Extra Breaths, coming to you straight from the lungs of Siobhan. In Episode 09 of Straight from the Lungs, Siobhan spoke about being in lockdown and eventually making the transition back to work. Here’s more from her. View Transcript Stay in touch by heading over to our website and following the show on Facebook, Twitter, and Instagram.…
…
continue reading
In March 2020, the world went into lockdown to prevent the spread of COVID-19. The advice for the general public was to only leave home for essential needs. However, many people with Cystic Fibrosis were told not to leave the house at all, with some being told to move home altogether. View Transcript Do you need advice about leaving home or returni…
…
continue reading
These are Extra Breaths, coming to you Straight from the Lungs of Veronika and Kenny. In Episode 8 of Straight from the Lungs, Veronika told the story of catcalling a boy named Kenny on a beach and marrying him 3 months later. Here’s more from them. Transcript coming soon. Stay in touch by heading over to our website and following the show on Faceb…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Extra Breaths 08 - Better than Flowers
2:22
2:22
Afspil senere
Afspil senere
Lister
Like
Liked
2:22
These are Extra Breaths, coming to you Straight from the Lungs of Katie. In Episode 08 of Straight from the Lungs, Katie spoke about her boyfriend Michael and how he helps manage her Cystic Fibrosis. Here’s more from her. Transcript coming soon. Stay in touch by heading over to our website and following the show on Facebook, Twitter, and Instagram.…
…
continue reading
When you find the person you want to spend the rest of your life with, how do you tell them you have something as big as Cystic Fibrosis? It’s tricky enough sometimes for people that have CF to cope with everything – how is someone else going to react when they’re suddenly plunged into this scary new world? Transcript coming soon. Stay in touch by …
…
continue reading
These are Extra Breaths, coming to you Straight from the Lungs of Fiona. In Episode 07 of Straight from the Lungs, Fiona spoke about the lung function test and how it can be used to determine the wellbeing of someone with Cystic Fibrosis. Here’s more from her. Transcript coming soon. Stay in touch by heading over to our website and following the sh…
…
continue reading
These are Extra Breaths, coming to you Straight from the Lungs of George. In Episode 07 of Straight from the Lungs, George spoke about how an emergency hospital visit several years ago made him rethink his entire approach to Cystic Fibrosis. Here’s more from him. Transcript coming soon. Stay in touch by heading over to our website and following the…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Extra Breaths 07 - My First Hospital Stay
8:18
8:18
Afspil senere
Afspil senere
Lister
Like
Liked
8:18
These are Extra Breaths, coming to you Straight from the Lungs of me, William Marler. In Episode 07 of Straight from the Lungs, We spoke about how people with Cystic Fibrosis sometimes need to go into hospital for a couple of weeks to have IV antibiotics. I'm 24 and I've been in hospital 9 times, but I still remember my first every hospital stay 12…
…
continue reading
These are Extra Breaths, coming to you Straight from the Lungs of Dr Jayesh Bhatt. In Episode 07 of Straight from the Lungs, Dr Bhatt spoke about how a 2-week hospital stay is often necessary for people with Cystic Fibrosis Here’s more from him. Transcript coming soon. Stay in touch by heading over to our website and following the show on Facebook,…
…
continue reading
Hospital can feel like a second home for some people with Cystic Fibrosis. We have regular check-ups that last a couple of hours, and if we’re ill it can mean staying in hospital for a couple of weeks. We have many CF teams here in the UK, each with their own specialist staff. Transcript coming soon. Stay in touch by heading over to our website and…
…
continue reading
These are Extra Breaths, coming to you Straight from the Lungs of Ravi and me, William Marler. In Episode 06 of Straight from the Lungs, we heard about the different jobs that people with Cystic Fibrosis have and how they manage their CF at work. I’m an animator and I’ve had the opportunity to work on some really exciting projects over the years. I…
…
continue reading
These are Extra Breaths coming to you Straight from the Lungs of Katie. In episode 6 of Straight from the Lungs, Katie spoke about her passion for acting and how her experiences with cystic fibrosis have shaped her approach to it. Here’s more from her. Transcript coming soon. Stay in touch by heading over to our website and following the show on Fa…
…
continue reading
These are Extra Breaths, coming to you Straight from the Lungs of George. In Episode 06 of Straight from the Lungs, we heard about how some people with Cystic Fibrosis have been able to find a career they’re very excited about. George’s passion for fitness led him to become a personal trainer. Transcript coming soon. Stay in touch by heading over t…
…
continue reading
These are Extra Breaths coming to you Straight from the Lungs of Ang. In episode 6 of Straight from the Lungs, Ange spoke about Personal Independence Payment and how it can provide financial support to someone with Cystic Fibrosis in the UK. Here’s more from her. Find out more about applying for PIP on the official website. Transcript coming soon. …
…
continue reading
These are Extra Breaths coming to you Straight from the Lungs of Kate. In episode 6 of Straight from the Lungs, I spoke about my difficult experience applying for Personal Independence Payment. As stressful as it was, I’m very fortunate that I didn’t need to take it to court. Kate however, wasn’t so lucky. Transcript coming soon. Stay in touch by h…
…
continue reading
Cystic Fibrosis is no longer considered a childhood illness. A huge step on the journey to adulthood is getting a job, and it’s a step that the majority of people with CF will be able to take. This is a big change from school or university though because everything you do now impacts not just yourself, but your colleagues, and the boss. Transcript …
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Extra Breaths 05 - The Music of Straight from the Lungs
37:01
37:01
Afspil senere
Afspil senere
Lister
Like
Liked
37:01
These are Extra Breaths, coming to you Straight from the Lungs of me, William Marler, and I'm joined in the studio by Ben Weatherill. We sit down and talk about how Ben composed the music of Straight from the Lungs and the huge impact it has on the show. Transcript coming soon. Stay in touch by heading over to our website and following the show on …
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Extra Breaths 05 - Preparing for University
4:20
4:20
Afspil senere
Afspil senere
Lister
Like
Liked
4:20
These are Extra Breaths, coming to you Straight from the Lungs of my mum and dad, Liz and Jerry. In Episode 05 of Straight from the Lungs, Mum and Dad spoke about the various ways they helped me prepare for leaving home and going to University. Here’s more from them. Transcript coming soon. Stay in touch by heading over to our website and following…
…
continue reading
These are Extra Breaths, coming to you Straight from the Lungs of Ange. In Episode 05 of Straight from the Lungs, Ange spoke about how, in the UK, university students with Cystic Fibrosis can be supported on their journey by the Disabled Students’ Allowance. Here’s more from her. Find out more about applying for DSA on the official website. Transcr…
…
continue reading
For a lot of people, going to university or college is a right of passage to finally understand your purpose in life. It’s also the chance to meet lifelong friends and make some amazing memories. But leaving home and taking on a Cystic Fibrosis lifestyle all on your own can be very scary. When you get to university though, you’ll often realise that…
…
continue reading
These are Extra Breaths, coming to you Straight from the Lungs of Helen Mitchell. In episode 4 of Straight from the Lungs, Helen spoke about the various ways she helped me handle my Cystic Fibrosis at secondary school. Here’s more from her. Trasncript coming soon. Stay in touch by heading over to our website and following the show on Facebook, Twit…
…
continue reading
Warning: Contains mild language. When a baby is diagnosed with Cystic Fibrosis, it’s inevitable that over the years, routines will develop which the parents will eventually know inside out. It’s not long though till they have to go off to school, where for part of the day, the parents aren’t the ones caring for them. That journey can be a difficult…
…
continue reading
These are Extra Breaths coming to you Straight from the Lungs of Fiona. In Episode 03 of Straight from the Lungs, Fiona spoke about the various airway clearance methods available to treat Cystic Fibrosis and the importance of exercise. Here’s more from her. Transcript coming soon. Stay in touch by heading over to our website and following the show …
…
continue reading
These are Extra Breaths coming to you Straight from the Lungs of Nick. In Episode 03 of Straight from the Lungs, Nick spoke about what it took to become the first person with Cystic Fibrosis to reach the top of Mount Everest. Here’s more from him. Transcript coming soon. Stay in touch by heading over to our website and following the show on Faceboo…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Extra Breaths 03 - Ben Mudge AKA Thor
9:59
9:59
Afspil senere
Afspil senere
Lister
Like
Liked
9:59
Coming to you Straight from the Lungs of Ben Mudge AKA Thor. In Episode 03 of Straight from the Lungs, Ben spoke about how Cystic Fibrosis is a driving force for bodybuilding and how he loves inspiring other people with CF. Here’s more from him. Transcript coming soon. Stay in touch by heading over to our website and following the show on Facebook,…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Extra Breaths 03 - CF-Related Diabetes
7:16
7:16
Afspil senere
Afspil senere
Lister
Like
Liked
7:16
These are Extra Breaths coming to you Straight from the Lungs of Darren. In Episode 03 of Straight from the Lungs, Darren spoke about the various ways Cystic Fibrosis can affect nutrition. A big impact it can have on some people is something called CF-Related Diabetes. Transcript coming soon. Stay in touch by heading over to our website and followi…
…
continue reading
Cystic Fibrosis affects lots of different areas of the body in lots of different ways. Sometimes they’re slightly annoying, and other times they’re absolutely terrifying. However, there are also many ways to treat CF, and many people who decide to push their bodies to the very limit. Transcript coming soon. Stay in touch by heading over to our webs…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Extra Breaths 02 - Double Diagnosis
15:21
15:21
Afspil senere
Afspil senere
Lister
Like
Liked
15:21
These are Extra Breaths, coming to you Straight from the Lungs of Kirsty. In Episode 02 of Straight from the Lungs, Kirsty spoke about having to deal with not one, but two of her children being diagnosed with Cystic Fibrosis. Here’s more from her. Transcript coming soon. Stay in touch by heading over to our website and following the show on Faceboo…
…
continue reading
These are Extra Breaths, coming to you Straight from the Lungs of Amanda. In Episode 02 of Straight from the Lungs, Amanda spoke about the process of diagnosing a baby with Cystic Fibrosis and how to break that news. Here’s more from her. Transcript coming soon. Stay in touch by heading over to our website and following the show on Facebook, Twitte…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Extra Breaths 02 - Difficult Diagnosis
6:32
6:32
Afspil senere
Afspil senere
Lister
Like
Liked
6:32
These are Extra Breaths, coming to you Straight from the Lungs of Martine. In Episode 02 of Straight from the Lungs, Martine spoke about the drastic measures she took to get her daughter Lisa to take her Cystic Fibrosis seriously as a teenager. Let’s go back further to the difficult process of getting Lisa diagnosed. Transcript coming soon. Stay in…
…
continue reading
These are Extra Breaths, coming to you Straight from the Lungs of my grandmother Cherry, and my Mum and Dad, Liz and Jerry. In Episode 02 of Straight from the Lungs, Mum, Dad, and Cherry spoke about how they reacted to my Cystic Fibrosis diagnosis and how the whole family has dealt with it ever since. Here’s more from them. Transcript coming soon. …
…
continue reading
These are Extra Breaths, coming to you Straight from the Lungs of Veronika. In Episode 02 of Straight from the Lungs, Veronika spoke about how she dealt with receiving a Cystic Fibrosis diagnosis at the age of 9. Here’s more from her. Transcript coming soon. Stay in touch by heading over to our website and following the show on Facebook, Twitter, a…
…
continue reading
The Cystic Fibrosis journey starts when you receive the diagnosis. The news is usually give to parents of babies or young children, and while it may seem like the end of something beautiful, in fact, it’s only the beginning. View Transcript Stay in touch by heading over to our website and following the show on Facebook, Twitter, and Instagram. Pres…
…
continue reading
On 11th September 2018, I launched Straight from the Lungs live at the UK Cystic Fibrosis Conference. As part of the launch, I answered questions submitted by people online, drawing from my own experience of CF and those of some of the guests I’ve interviewed for the podcast. Here are all of the questions I responded to on stage along with a few ot…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Extra Breaths 01 - The Story of Straight from the Lungs
37:28
37:28
Afspil senere
Afspil senere
Lister
Like
Liked
37:28
These are Extra Breaths, coming to you Straight from the Lungs of me, William Marler, and I'm joined in the studio by Sam Lewis. We sit down and talk about how Straight from the Lungs was started and Sam's role in the production of the show. Sam mentioned Studs Terkel, whose interviews from the 1970s can be heard on Radio Diaries. View Transcript S…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Extra Breaths 01 - What is Cystic Fibrosis?
5:40
5:40
Afspil senere
Afspil senere
Lister
Like
Liked
5:40
These are Extra Breaths, coming to you Straight from the Lungs of Dr Jayesh Bhatt. In Episode 01 of Straight from the Lungs, Dr Bhatt gave a brief medical explanation of Cystic Fibrosis and how it can affect the body. Here’s more from him. View Transcript Stay in touch by heading over to our website and following the show on Facebook, Twitter, and …
…
continue reading
Over the next 14 episodes, I’m going to be exploring the complex world of Cystic Fibrosis, from the initial diagnosis and treatment of it, to going to school, getting a job, and even falling in love. You’ll hear from the experts of CF: the people living with it everyday and their friends and family, as well as the people who dedicate their lives to…
…
continue reading
Straight from the Lungs launches on 11th September 2018, helping to share real stories from real people affected by Cystic Fibrosis. Listen to a sneak peek to meet some of the people featured in the podcast.Af William Marler
…
continue reading