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A Family's Fight to Find a Cure

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Manage episode 435011490 series 1000489
Indhold leveret af Michigan Public. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Michigan Public eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

Detroit parents Bridget Finn and Sam Beaubien found their lives upended when their daughter, Florence, was diagnosed with a rare genetic disorder called STXBP1. As they adjusted to a new reality for their family, they also worked to fund research for their daughter's disorder. On today's episode, we talk to Bridget and Sam about their family's story.

GUESTS:

Bridget Finn, Director, Art Basel Miami Beach

Sam Beaubien, audio producer and musician

Looking for more conversations from Stateside? Right this way.

If you like what you hear on the pod, consider supporting our work.

Music in this episode by Blue Dot Sessions.

See omnystudio.com/listener for privacy information.

  continue reading

529 episoder

Artwork

A Family's Fight to Find a Cure

Stateside

40 subscribers

published

iconDel
 
Manage episode 435011490 series 1000489
Indhold leveret af Michigan Public. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Michigan Public eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

Detroit parents Bridget Finn and Sam Beaubien found their lives upended when their daughter, Florence, was diagnosed with a rare genetic disorder called STXBP1. As they adjusted to a new reality for their family, they also worked to fund research for their daughter's disorder. On today's episode, we talk to Bridget and Sam about their family's story.

GUESTS:

Bridget Finn, Director, Art Basel Miami Beach

Sam Beaubien, audio producer and musician

Looking for more conversations from Stateside? Right this way.

If you like what you hear on the pod, consider supporting our work.

Music in this episode by Blue Dot Sessions.

See omnystudio.com/listener for privacy information.

  continue reading

529 episoder

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