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Talking Chorea Blues - Amanda Schieber
Manage episode 324599654 series 3220748
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This special edition of the Mixtape Tales podcast is a discussion of Huntington's Disease with my cousin, Amanda. She talks about the testing process, why advocacy is crucial, and shares her -- OUR -- family story.
I am titling these episodes "Talking Chorea Blues" in honor of an unrecorded Woody Guthrie song related to his illness. In case you were wondering where the title came from :)
If you want to tell your family's HD story, shoot me an email pbriggs1977@gmail.com and we will set up a time to talk. I can not thank Amanda enough for taking the time to do this, and I hope you find her episode informative and helpful.
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