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TAPS (Twin Anemia Polycythemia Sequence). What is it and why it really matters when pregnant with twins with Stephanie Ernst

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Manage episode 402061924 series 2548846
Indhold leveret af Natalie Diaz. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Natalie Diaz eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

In this episode, we unravel the mysteries surrounding Twin Anemia Polycythemia Sequence (TAPS) alongside Stephanie Ernst, a dedicated twin mom whose journey propelled her to advocate for awareness and support for families affected by this rare condition.

Stephanie's personal narrative, fueled by her experience with identical twin daughters born with TAPS, serves as the driving force behind her mission to shed light on this often overlooked aspect of twin pregnancies. Stephanie underscores the vital role of researchers and advocates in amplifying awareness and understanding of TAPS. From founding the TAPS Support Facebook group to establishing a dedicated foundation for research funding, Stephanie's efforts have cultivated a supportive community where families can find solace, resources, and empowerment.

For more information:

https://www.tapssupport.com/

https://stephanieernst.nl/advocacy/

Subscribe to the Twiniversity Email Newsletter!

Expecting twins? Twiniversity has you COVERED with online classes on:

  • Breastfeeding Twins
  • Twins After Singletons
  • Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing)

Click here to sign up for a class!

Follow us on:

  continue reading

209 episoder

Artwork
iconDel
 
Manage episode 402061924 series 2548846
Indhold leveret af Natalie Diaz. Alt podcastindhold inklusive episoder, grafik og podcastbeskrivelser uploades og leveres direkte af Natalie Diaz eller deres podcastplatformspartner. Hvis du mener, at nogen bruger dit ophavsretligt beskyttede værk uden din tilladelse, kan du følge processen beskrevet her https://da.player.fm/legal.

In this episode, we unravel the mysteries surrounding Twin Anemia Polycythemia Sequence (TAPS) alongside Stephanie Ernst, a dedicated twin mom whose journey propelled her to advocate for awareness and support for families affected by this rare condition.

Stephanie's personal narrative, fueled by her experience with identical twin daughters born with TAPS, serves as the driving force behind her mission to shed light on this often overlooked aspect of twin pregnancies. Stephanie underscores the vital role of researchers and advocates in amplifying awareness and understanding of TAPS. From founding the TAPS Support Facebook group to establishing a dedicated foundation for research funding, Stephanie's efforts have cultivated a supportive community where families can find solace, resources, and empowerment.

For more information:

https://www.tapssupport.com/

https://stephanieernst.nl/advocacy/

Subscribe to the Twiniversity Email Newsletter!

Expecting twins? Twiniversity has you COVERED with online classes on:

  • Breastfeeding Twins
  • Twins After Singletons
  • Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing)

Click here to sign up for a class!

Follow us on:

  continue reading

209 episoder

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